Attorney General Bonta Urgently Issues Consumer Alert for 23andMe Customers

Estimated reading time: 7 minutes

Disclaimer: This article is not legal advice. Always consult with a legal professional before taking any action.

Introduction: A Call to Protect Your Genetic Data

California Attorney General Rob Bonta has issued an urgent consumer alert directed at customers of 23andMe, a prominent genetic testing and information company. Amid reports of financial distress and significant doubts about 23andMe’s ability to continue as a going concern, AG Bonta reminds Californians of their rights under the Genetic Information Privacy Act (GIPA) and the California Consumer Privacy Act (CCPA). With 23andMe holding a vast trove of sensitive consumer genetic data, now is the time for consumers to exercise control over their personal information.

What the Alert Means for 23andMe Customers

Due to the reported financial difficulties at 23andMe, consumers are urged to consider directing the company to delete their genetic data and destroy any stored biological samples. Under both GIPA and CCPA, Californians have the legal right to request the deletion of their personal genetic information. Attorney General Bonta emphasized that California’s robust privacy laws empower consumers to take control of their data in situations like this.

Your Rights Under GIPA and CCPA

• Genetic Information Privacy Act (GIPA): Grants California consumers the right to have their genetic data deleted and any biological samples destroyed after testing.
• California Consumer Privacy Act (CCPA): Provides consumers with the right to request that a business delete personal information, including genetic data, collected from them.

These rights allow you to ensure that your sensitive genetic information is not misused or retained by 23andMe, especially in light of the company’s current financial instability.

How to Delete Your Genetic Data from 23andMe

If you decide to exercise your rights, follow these steps carefully:

1. Log In:
   Sign in to your 23andMe account through the company’s website.
2. Access Settings:
   Navigate to the “Settings” section of your profile.
3. Locate Data Section:
   Scroll down to the section labeled “23andMe Data.” Here, you will have options related to your genetic information.
4. Download Your Data (Optional):
   If you wish to keep a copy of your genetic data, choose the option to download it to your device before proceeding.
5. Initiate Deletion:
   Scroll to the “Delete Data” section and click on “Permanently Delete Data.”
6. Confirm Your Request:
   You will receive an email from 23andMe. Follow the instructions in the email to confirm your deletion request.

How to Destroy Your 23andMe Test Sample

If you previously opted to have your saliva sample and DNA stored by 23andMe, you can change that preference:

1. Go to Preferences:
   In your account settings, locate the “Preferences” section.
2. Modify Storage Settings:
   Adjust your settings to opt out of having your test sample stored. This action will prompt 23andMe to destroy your biological sample.

How to Revoke Permission for Research Use of Your Genetic Data

If you previously granted 23andMe and its partners permission to use your genetic data for research purposes, you can withdraw that consent:

1. Access Research Settings:
   In your account settings, find the “Research and Product Consents” section.
2. Withdraw Consent:
   Change your settings to revoke permission for your genetic data and test samples to be used in research.

Final Thoughts: Take Control of Your Data

With 23andMe facing financial uncertainties, Attorney General Bonta’s consumer alert serves as a crucial reminder that Californians have the right to control their genetic information. Whether you choose to delete your data, have your test sample destroyed, or revoke consent for research use, now is the time to take action. Protecting your personal information is essential, and understanding your rights under GIPA and CCPA empowers you to make informed decisions.