How to Delete Your 23andMe Data: A Step-by-Step Guide

Estimated reading time: 7 minutes

Disclaimer: This article is not legal advice. Always consult with a legal professional for personalized guidance on data privacy matters.

Table of Contents

1. Introduction: Why Delete 23andMe Data?
2. Understanding Your Rights Under GIPA and CCPA
3. Step-by-Step Guide to Delete Your 23andMe Data
4. How to Destroy Your Test Sample
5. Withdrawing Consent for Research Use
6. Final Thoughts

Introduction: Why Delete 23andMe Data?

In an era where personal data is more valuable than ever, safeguarding your sensitive genetic information is paramount. Many individuals now choose to delete 23andMe data to protect their privacy, especially amid concerns over data breaches or potential misuse. This guide explains why you might consider deleting your 23andMe data and walks you through the process step by step.

Understanding Your Rights Under GIPA and CCPA

California consumers have powerful rights when it comes to their personal data. Under the Genetic Information Privacy Act (GIPA) and the California Consumer Privacy Act (CCPA), you can:

• Delete Your Genetic Data: Request that 23andMe permanently removes your genetic information.
• Destroy Stored Samples: Instruct the company to destroy any biological samples (e.g., saliva) it holds.
• Withdraw Research Consent: Revoke any permissions given for your data to be used for research purposes.

Knowing your rights is the first step in ensuring your privacy is protected.

Step-by-Step Guide to Delete Your 23andMe Data

Follow these steps to delete 23andMe data from your account:

1. Log into Your Account:
   Access your 23andMe account via the website using your username and password.
2. Navigate to Settings:
   Once logged in, click on your profile and select the “Settings” option.
3. Locate the Data Section:
   Scroll down to the section labeled “23andMe Data” where you manage your genetic information.
4. Download Your Data (Optional):
   If you wish to keep a copy of your genetic information, download your data before proceeding with deletion.
5. Initiate the Deletion Process:
   Scroll to the “Delete Data” section and click on “Permanently Delete Data.”
   Follow the on-screen instructions carefully.
6. Confirm Your Request:
   After initiating deletion, you will receive a confirmation email from 23andMe. Click the link in the email to confirm and finalize the deletion process.

How to Destroy Your Test Sample

If you previously opted to have your saliva sample stored by 23andMe:

• Go to Preferences:
  In the “Settings” menu, find the “Preferences” section.
• Modify Your Storage Settings:
  Adjust the settings to opt out of sample storage. This change will instruct 23andMe to destroy any stored biological samples.

Withdrawing Consent for Research Use

If you consented to allow 23andMe or third-party researchers to use your genetic data:

• Access Research Settings:
  Within your account, locate the “Research and Product Consents” section.
• Withdraw Your Consent:
  Change your settings to revoke permission for the use of your genetic data and samples for research purposes.

Final Thoughts

Deciding to delete 23andMe data is a personal choice driven by a desire to protect your genetic privacy. With powerful consumer rights under GIPA and CCPA, you have the ability to take control of your sensitive information. By following the steps outlined in this guide, you can ensure that your genetic data is permanently removed from 23andMe’s databases and that any stored samples are destroyed.